Mary's Blog (11)

Are always listed here: Cushing's Newsletters The most recent is April 23, 2009 In This Issue Welcome to the latest Cushing's Newsletter! Cushie Bloggers Upcoming Interviews Upcoming Meetings Podcasts Cushing's on Facebook and Twitter Media - Rare Care for a Rare Disease Want to Volunteer? Robin writes: Diagnosing and Treating Cushing's: Presentations by Dr. Theodore C. (Ted) Friedman Clinical Trial: Women Wit… Continue

http://www.mynewsletterbuilder.com/tools/view_newsletter.php?newsletter_id=1409733169 In This Issue Welcome to the new Newsletters! This Week's Chat Schedule News Items Upcoming Interviews Upcoming Meetings An Interesting Blog on Support Groups New and Updated Bios Want to Volunteer? Cushie Bloggers Testing: When the "gold standard" becomes tarnished.... Book Project Did You Know? Donations Helpful Links Continue

Dr. Robert Lamberts aka "Dr. Rob": Dr. Robert Lamberts, aka "Dr. Rob", write the amusing and insightful Musings of a Distractible Mind. He also is the "father" of a lobster named Zippy who travels the world seeking a cure for pediatric cancer. His profile in his blog reads: Doctor, Blogger, Goofball. Yes, that is me. Dr. Sid called me the "Dave Barry of medical blogging," but I like to think of myself as the "Hulk Hogan" of the Medical blog world. It just makes more sense to me. Anyway, I auth… Continue

Sheryl will talk about what it's been like living with Addison's after a BLA - for over 30 years. Read Sheryl's bio at http://www.cushings-help.com/sheryl.htm. The Call-In number is (646) 200-0162. http://www.blogtalkradio.com/CushingsHelp Continue

Gracie says: "I've been having symptoms of Cushing's at least 14 yrs. I began testing with Dr. Friedman June, 2007. I was diagnosed in May, 2008 with cyclical Cushing's disease. I have surgery coming up soon. I'm going to see Dr. J. next Monday, and I'll get my surgery date that day, so I will know by the night of the program, when I am going to surgery.) Let me know if you need more info." The Call-In number is (646) 200-0162. Listen to… Continue

Katie's short bio: Symptoms started in 2002 at age 22, or before. Jan. 2008 - 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 - DX - hypothalamic amenorrhea Mar. 2008 - DX - pituitary adenoma, hypogonadism - female Katie will be an officer in the upcoming Cushing's Help Organization At 7:30PM eastern Continue

Kate (Fairley) has had symptoms since 1991. She has had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituiarism and a CSF leak. Kate writes in her message board signature: * 1991 - Symptoms began * Oct. 4, 2006 - Testing begins with Dr. F * Dec. 24, 2006 - Dx of Episodic Cushing's Disease * Jan. 5, 2007 - 1st pit surgery with Dr. J in P'burgh * April 3, 2007 - Confirmation of path-proven ACTH-secr… Continue

This week's interview will be with Charlie (creativeogre) at 7:30PM eastern.

From Charlie's introductory post: Here is my story..... Approximately 18 months ago, I had 3 back to back sinus infections that did not respond well to antibiotics. A CT of my head was performed and he was found to have a bone spur in my sinus. One year ago, surge… Continue

Happy Fourth of July! Next week's guest will be Charlie (creativeogre) Stay tuned for more info next week about this more interesting guest! Continue

StaceyJenn, April 3. StaceyJenn was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies).

Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds. Her doctor stopped practicing and she was transferred to his associate. She switched StaceyJenn to

… Continue

Monica (Monicaroni) and Crystal (Vinesqueen), March 27, 2008. The Call-In number is (646) 200-0162.

Crystal and Monica went through every step of their Cushing's journey together--tested together, had surgeries the same days, and have become best friends because of it.

Monica was diagnosed with Cyclical Cush

… Continue