It's about time there was some support for Cushing's!

All Blog Posts (12)

Re: Clinical trial of Corlux (mifepristone) in the treatment of Cushing's syndrome

We are currently conducting a clinical trial on the use of Corlux (mifepristone) in the treatment of the signs and symptoms of Cushing's syndrome. For patients who had failed pituitary surgery or radiation therapy or those who have been uncontrolled by ketoconazole, this might be a good alternative. Let me emphasize though that this is a research study and we are looking for volunteers. If you want to learn more, please indicate your interest via this posting. Thanks.… Continue

Added by Alan Dp on September 8, 2009 at 12:18pm — No Comments

Current Cushing's Newsletters

Are always listed here: Cushing's Newsletters The most recent is April 23, 2009 In This Issue Welcome to the latest Cushing's Newsletter! Cushie Bloggers Upcoming Interviews Upcoming Meetings Podcasts Cushing's on Facebook and Twitter Media - Rare Care for a Rare Disease Want to Volunteer? Robin writes: Diagnosing and Treating Cushing's: Presentations by Dr. Theodore C. (Ted) Friedman Clinical Trial: Women Wit… Continue

Added by Mary on April 23, 2009 at 11:20am — No Comments

The Current Cushing's Newsletter

http://www.mynewsletterbuilder.com/tools/view_newsletter.php?newsletter_id=1409733169 In This Issue Welcome to the new Newsletters! This Week's Chat Schedule News Items Upcoming Interviews Upcoming Meetings An Interesting Blog on Support Groups New and Updated Bios Want to Volunteer? Cushie Bloggers Testing: When the "gold standard" becomes tarnished.... Book Project Did You Know? Donations Helpful Links Continue

Added by Mary on September 30, 2008 at 10:33am — No Comments

Interview with Dr Rob, October 2, 2008

Dr. Robert Lamberts aka "Dr. Rob": Dr. Robert Lamberts, aka "Dr. Rob", write the amusing and insightful Musings of a Distractible Mind. He also is the "father" of a lobster named Zippy who travels the world seeking a cure for pediatric cancer. His profile in his blog reads: Doctor, Blogger, Goofball. Yes, that is me. Dr. Sid called me the "Dave Barry of medical blogging," but I like to think of myself as the "Hulk Hogan" of the Medical blog world. It just makes more sense to me. Anyway, I auth… Continue

Added by Mary on September 26, 2008 at 11:56am — No Comments

Interview with Sheryl (sherylr), August 7, 7:30PM

Sheryl will talk about what it's been like living with Addison's after a BLA - for over 30 years. Read Sheryl's bio at http://www.cushings-help.com/sheryl.htm. The Call-In number is (646) 200-0162. http://www.blogtalkradio.com/CushingsHelp Continue

Added by Mary on August 1, 2008 at 1:30pm — No Comments

Interview with Gracie (fatnsassy) July 31, 2008

Gracie says: "I've been having symptoms of Cushing's at least 14 yrs. I began testing with Dr. Friedman June, 2007. I was diagnosed in May, 2008 with cyclical Cushing's disease. I have surgery coming up soon. I'm going to see Dr. J. next Monday, and I'll get my surgery date that day, so I will know by the night of the program, when I am going to surgery.) Let me know if you need more info." The Call-In number is (646) 200-0162. Listen to… Continue

Added by Mary on July 26, 2008 at 12:14pm — No Comments

Interview with Katie (kvb927) July 24, 2008

Katie's short bio: Symptoms started in 2002 at age 22, or before. Jan. 2008 - 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 - DX - hypothalamic amenorrhea Mar. 2008 - DX - pituitary adenoma, hypogonadism - female Katie will be an officer in the upcoming Cushing's Help Organization At 7:30PM eastern Continue

Added by Mary on July 23, 2008 at 2:00am — No Comments

Interview with Kate (Fairley) July 17, 2008

Kate (Fairley) has had symptoms since 1991. She has had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituiarism and a CSF leak. Kate writes in her message board signature: * 1991 - Symptoms began * Oct. 4, 2006 - Testing begins with Dr. F * Dec. 24, 2006 - Dx of Episodic Cushing's Disease * Jan. 5, 2007 - 1st pit surgery with Dr. J in P'burgh * April 3, 2007 - Confirmation of path-proven ACTH-secr… Continue

Added by Mary on July 17, 2008 at 10:04am — No Comments

Charlie (creativeogre)'s Interview Thursday July 10 at 7:30PM

This week's interview will be with Charlie (creativeogre) at 7:30PM eastern.

From Charlie's introductory post: Here is my story..... Approximately 18 months ago, I had 3 back to back sinus infections that did not respond well to antibiotics. A CT of my head was performed and he was found to have a bone spur in my sinus. One year ago, surge… Continue

Added by Mary on July 7, 2008 at 12:04pm — No Comments

No Interview this week!

Happy Fourth of July! Next week's guest will be Charlie (creativeogre) Stay tuned for more info next week about this more interesting guest! Continue

Added by Mary on July 2, 2008 at 11:00am — No Comments

This week in VoiceChat

StaceyJenn, April 3. StaceyJenn was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies).

Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds. Her doctor stopped practicing and she was transferred to his associate. She switched StaceyJenn to

… Continue

Added by Mary on March 29, 2008 at 11:55pm — No Comments

This week in VoiceChat

Monica (Monicaroni) and Crystal (Vinesqueen), March 27, 2008. The Call-In number is (646) 200-0162.

Crystal and Monica went through every step of their Cushing's journey together--tested together, had surgeries the same days, and have become best friends because of it.

Monica was diagnosed with Cyclical Cush

… Continue

Added by Mary on March 22, 2008 at 1:40pm — No Comments